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SUDDENLY BLIND ADULT, SUDDENLY DISABLED ADULT, AND SUDDENLY ILL ADULT SURVIVOR'S GUIDE

: THE EMANCIPATION PROCLAMATION FOR INDEPENDENT LIVING

Thoroughly encouraging and, best of all, entirely practical.

A guide to not just coping, but living in the wake of a sudden catastrophic disability.

Bray, who operates a healing ministry in Arizona and experienced an accident years ago in which he lost his sight, is a testament to St. Barton’s ode: “I am hurt, but I am not slain. I will lie me down and bleed awhile, then I will rise up and fight again.” In a voice that is businesslike, but still buoyant, he advocates for maintaining one’s independence and decision-making authority in the face of disability, plowing through the trauma, humiliation and embarrassment that a sudden change in your physical health entails. Bray’s advice is sprinkled with nondenominational Christianity and leavened with humor: “This book cannot and will not diminish the absolute hell of a suddenly blind individual, but if in hell, why not bring an air conditioner and try to beat the devil at his own game.” The author’s mantra is that a person will only be victimized if he or she plays the role of a victim. Bray advises those living with disabilities to follow his brass-tacks listing of commandments, including warnings, reminders and rules: how to secure mobility (“develop the right ‘attitude’ by never looking at the ground while traveling. Since the [suddenly blind] can’t see it anyway, it doesn’t make sense to look down”), tap into the benefits available for higher education, deal with finances and organize a kitchen and cook. The author wants the suddenly disabled to be their own masters and delegate any personal authority only as a last resort, while taking full advantage of the laws assisting persons with disabilities, and the panoply of community resources at their disposal. Much of the book covers optimizing use of the computer for entertainment and information, and it closes with a short segment on physical fitness. The author spells out each of his prescriptions in aching detail, leaving no issue unexplored.

Thoroughly encouraging and, best of all, entirely practical.

Pub Date: June 1, 2008

ISBN: 978-1-4196-0633-5

Page Count: -

Publisher: N/A

Review Posted Online: May 23, 2010

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BETWEEN THE WORLD AND ME

NOTES ON THE FIRST 150 YEARS IN AMERICA

This moving, potent testament might have been titled “Black Lives Matter.” Or: “An American Tragedy.”

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The powerful story of a father’s past and a son’s future.

Atlantic senior writer Coates (The Beautiful Struggle: A Father, Two Sons, and an Unlikely Road to Manhood, 2008) offers this eloquent memoir as a letter to his teenage son, bearing witness to his own experiences and conveying passionate hopes for his son’s life. “I am wounded,” he writes. “I am marked by old codes, which shielded me in one world and then chained me in the next.” Coates grew up in the tough neighborhood of West Baltimore, beaten into obedience by his father. “I was a capable boy, intelligent and well-liked,” he remembers, “but powerfully afraid.” His life changed dramatically at Howard University, where his father taught and from which several siblings graduated. Howard, he writes, “had always been one of the most critical gathering posts for black people.” He calls it The Mecca, and its faculty and his fellow students expanded his horizons, helping him to understand “that the black world was its own thing, more than a photo-negative of the people who believe they are white.” Coates refers repeatedly to whites’ insistence on their exclusive racial identity; he realizes now “that nothing so essentialist as race” divides people, but rather “the actual injury done by people intent on naming us, intent on believing that what they have named matters more than anything we could ever actually do.” After he married, the author’s world widened again in New York, and later in Paris, where he finally felt extricated from white America’s exploitative, consumerist dreams. He came to understand that “race” does not fully explain “the breach between the world and me,” yet race exerts a crucial force, and young blacks like his son are vulnerable and endangered by “majoritarian bandits.” Coates desperately wants his son to be able to live “apart from fear—even apart from me.”

This moving, potent testament might have been titled “Black Lives Matter.” Or: “An American Tragedy.”

Pub Date: July 8, 2015

ISBN: 978-0-8129-9354-7

Page Count: 176

Publisher: Spiegel & Grau

Review Posted Online: May 5, 2015

Kirkus Reviews Issue: July 1, 2015

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WHEN BREATH BECOMES AIR

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...

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A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.

Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.

Pub Date: Jan. 19, 2016

ISBN: 978-0-8129-8840-6

Page Count: 248

Publisher: Random House

Review Posted Online: Sept. 29, 2015

Kirkus Reviews Issue: Oct. 15, 2015

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