Through humor and horror, a blogger, copywriter, and screenwriter pulls back the curtain on the uncertain world of an epileptic.
Imagine having a seizure in a bodega and waking up to find the impact of your fall has destroyed your face, with a dislocated jaw and countless facial fractures and lacerations. That’s what happened to Jones a few years after being diagnosed with epilepsy. Using her wit as a coping mechanism, the author describes her plight, from the surprising diagnosis to overcoming multiple surgeries to reclaim movement in her face after her dramatic fall. It’s a shocking story that not only explains the still-perplexing experience of the disorder but also paints a picture of how those living with the condition struggle to create for themselves a new normal. “Not only was my language off,” writes Jones, “so too was my execution and sequencing. I was continually getting things wrong like thinking of an object that is a spoon and going over to get one in the totally wrong part of the kitchen.” The author doesn’t sugarcoat the heartbreak of her struggles, but at the same time, she’s persistently sarcastic through it all, even when her jaw had to be wired shut. “Good god, what was that smell? Everywhere around me now was the odor of briny, salty seawater, but with something extra….it was me!” she writes describing her lockjaw-induced halitosis. “It smelled like I’d licked the subway and then let it fester in the New York City heat amid some raw sewage.” If there’s one drawback to Jones’ knack for description, it’s her unwillingness to “murder her darlings.” The playful turns of phrase are enjoyable until she loses the plot, such as when the story shifts from Los Angeles to New York City. Fortunately, the story doesn’t hinge on location.
Like a candid conversation with an amusing friend, this is a surprisingly funny look at a clinically humorless disorder.