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I WILL SING LIFE

VOICES FROM THE HOLE IN THE WALL GANG CAMP

Reminiscent of Jill Krementz's affecting How It Feels to Fight For Your Life (1989), here's a collection of first-person accounts and poetry by campers at the Hole in the Wall Gang Camp, founded by Paul Newman for seriously ill kids. The poetry program that inspired this book was conducted at the camp two years ago by then-Yale students Berger and Lithwick. After the camp session, the two spent time with each of seven kids in the kids' homes, inviting them to talk about their experiences of life, camp, and being sick (the seven, ranging in age from ages 8 to 17, suffer from various cancers, sickle cell anemia, amputations, and AIDS). It's not surprising that the accounts are moving; what is surprising is the quality of some of the insights and poetry. The children's subjects are sometimes whimsical: ``hair, hair, everywhere''; throwing-up competitions with a friend in the next hospital room; a wonderfully inventive fantasy (``My Transfusion Family'') by Tina Kenney about getting transfused with the qualities of the 40 people who've given this young poet their blood. There are also, of course, many more serious poems. Kenney, a 17-year-old cancer patient, contributes the most consistently striking writing, including (in addition to ``My Transfusion Family'') a meditation on the lonely time in the hospital when visitors have gone home, TVs go off, and patients are alone with their thoughts; and a eulogy to three dead friends whose radiance pervades the writer's life as the stars illuminate the night sky. And there are many other young authors here who speak and write with words and perceptions beyond their years. A remarkable book that uplifts much more than it saddens. (Forty color photos—not seen—by Robert Benson illustrate the children's camp experience and family life.)

Pub Date: June 26, 1992

ISBN: 0-316-09273-8

Page Count: 224

Publisher: Little, Brown

Review Posted Online: May 19, 2010

Kirkus Reviews Issue: May 1, 1992

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A SHORT GUIDE TO A LONG LIFE

Useful but disappointingly commonplace tips.

In a follow-up to The End of Illness (2012), which explored how technological advances will transform medicine, Agus (Medicine and Engineering/Univ. of Southern California) restates time-tested but too often overlooked principles for healthy living.

The author outlines simple measures that average citizens can take to live healthier lives and extend their life spans by taking advantage of modern technology to develop personalized records. These would include a list of medical tests and recommended treatments. Agus also suggests keeping track of indicators that can be observed at home on a regular basis—e.g., changes in energy, weight, appetite and blood pressure, blood sugar and general appearance. He advises that all of this information be made available online, and it is also helpful to investigate family history and consider DNA testing where indicated. Along with maintaining a healthy weight, Agus emphasizes the importance of eating a balanced diet, with plenty of fresh fruits and vegetables and a minimum of red meat. Avoid packaged vitamins and food supplements, and if possible, grow your own vegetables or buy frozen vegetables, which will generally be fresher than those on supermarket shelves. The author also warns against processed foods that make health claims but contain additives or excessive amounts of sugar or fat. Regular mealtimes and plenty of sleep, frequent hand-washing and oral hygiene are a must; smoking and excessive time in the sun should also be avoided. Agus recommends that adults should consider taking statins and baby aspirin as preventative measures. He concludes with a decade-by-decade checklist of annual medical examinations that should be routine—e.g. blood pressure, diabetes and cholesterol screenings, from one’s 20s on; colonoscopies, prostate exams and mammograms later—and a variety of top-10 lists (for example, “Top 10 Reasons to Take a Walk”).

Useful but disappointingly commonplace tips.

Pub Date: Jan. 7, 2014

ISBN: 978-1-4767-3095-0

Page Count: 128

Publisher: Simon & Schuster

Review Posted Online: Sept. 30, 2013

Kirkus Reviews Issue: Oct. 15, 2013

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THE END OF ILLNESS

Oncologist Agus (Medicine and Engineering/Univ. of Southern California) predicts that the application of advanced technology for modeling complex systems will transform 21st-century medicine.

The author writes that a remark Nobel Laureate Murray Gell-Mann made to him in 2009—“Look at cancer as a system"—transformed the way he views his own specialty and the entire field of preventative medicine. It made him realize that “[r]ather than honoring the body as the exceedingly complex system that it is, we keep looking for the individual gene that has gone awry, or for the one ‘secret’ that can improve our health.” Agus writes that although the ability to sequence the entire human genome is a great step forward, it is insufficient for achieving a significant breakthrough. Even though it may start with a mutation, cancer “is a dynamic process that's happening…far from the confines of a static piece of DNA”—it involves the body's immune system, its ability to regulate cell growth, metabolism and more. Agus directs his university’s Center for Applied Molecular Medicine and is the co-founder of two personalized medicine companies, Applied Proteomics and Navigenics. His hope is that their research will contribute to developing better analytical tools for preventative medicine and for the treatment of cancers. These will address the functioning of the body as a whole, applying digital technology already used by physicists to provide virtual models of cancers and model the action of proteins that regulate cell communication in the body. He also hopes to develop tools that will provide information on the concentration of different proteins in a drop of blood taken from a patient, which may reveal the onset of disease. The author also includes some guiding principles and warnings about certain healthy practices that may not be so healthy. A refreshing change of pace in the medical field, but by venturing beyond his field of expertise to pontificate on a wide range of subjects, Agus makes his otherwise intriguing narrative difficult to follow.  

 

Pub Date: Jan. 1, 2012

ISBN: 978-1-4516-1017-8

Page Count: 288

Publisher: Free Press

Review Posted Online: Nov. 5, 2011

Kirkus Reviews Issue: Nov. 15, 2011

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