SUCH A PRETTY GIRL

From pity to empowerment, a woman who contracted polio as a baby illuminates her personal changes in attitude and accomplishment amid sweeping societal changes in rights for the disabled.

As a child in Sicily, LaSpina struggled with her family to understand the disease. Was it a sign of the family’s sin, and was she the cross they had to bear? Was it her destiny? If so, was she destined to be single and celibate? A nun or an old maid? Her father didn’t think so; he moved the family to America, hoping that better medical care would provide a miracle cure. The author found herself in hospitals with other children who had mobility issues and other diseases. She underwent a series of painful surgeries, intending to be able to walk and leave behind the wheelchair she had learned to love. Ultimately, she did walk, with braces and crutches, but she kept falling, breaking bones and complicating her life. She wanted to please her father, who had focused the family’s life and resources on enabling her to walk. Yet she was also becoming part of an activist movement that stressed acceptance and independence. Once feeling so insular, alone, and helpless, LaSpina, who created and taught courses in disability studies at the New School, began to feel “good to belong, to be part of something. I wasn’t sure what that something was, but I knew I wanted to be part of it.” Her memoir encompasses activism, civil disobedience, and legislation that would help move disability from the realm of disease requiring treatment (and eliciting pity) to respect, acceptance, and equal protection under the law. The author also addresses sexuality and romance, showing how she discovered that her life need not be limited as it once seemed destined to be.

“I was the luckiest woman in the world,” insists the author in this revelatory and deeply moving memoir that clearly shows how and why she came to feel that way.