FADE TO GRAY

A husband documents his wife’s battle with Alzheimer’s disease and offers help to other caregivers in this debut memoir.

Masinton’s wife, Dana, was about 56 years old when she was diagnosed with Alzheimer’s. The author first began to suspect that something was wrong when Dana, a realtor, began to struggle with reconciling her bank account and following recipes. The couple sought multiple medical opinions over a two-year period before Alzheimer’s was formally diagnosed. During this time, Masinton also observed a significant personality change, with Dana becoming “increasingly irascible.” The memoir charts Dana’s deterioration and the escalating pressures placed on the author as the primary caregiver. Masinton candidly discusses the triumphs and failings of the medical system, the difficulties of finding a suitable part-time helper, and the painful moment when admission to a residential care facility became the only option. With the intention of providing Alzheimer’s caregivers a “roadmap” of what to expect, the author also supplies plenty of worthy, practical advice on topics such as long-term health care insurance and Medicaid. This is a thoughtfully conceived memoir. As the straight-talking narrative unfolds, Masinton includes passages in italics that represent “the voice of reason,” which provide knowledge he has accrued through “painful experience.” The author pulls no punches, as when presenting the realities of home health care agencies: “If they destroy their relationship with you, they simply move to the next name on their waiting list, so don’t expect remedy or remorse in this purely seller’s market.” Readers expecting a more nurturing approach may be deterred by Masinton’s bluntness: “It is a fight to get through every hour of every day, with the only certainty being that tomorrow will be worse.” But others will find solace in recognizing their own struggles in his unflinching account. Delivered with a strong, convincing authorial voice, the counsel presented here will stay with readers, particularly regarding the importance of self-preservation: “You’re not going to be able to do anything, much less help anyone—especially the one you care so much about—if you kill yourself in the process.” Bold in its approach, this book could prove an invaluable lifeline for caregivers seeking guidance.

Forthright, edifying writing about Alzheimer’s caregiving.