True to its title, this gallows-humor–inflected memoir offers a frank look at life as a lucky young man with a potentially fatal disease.
Burcaw sets the tone of his candid memoir with a memorable introduction: the view of his brother Andrew’s ankle hair as Andrew helps him to urinate. Burcaw has spinal muscular atrophy, a progressive disease affecting his whole body. Fortunately, he’s also surrounded by supportive family and friends. He’s parlayed his experiences—from a broken femur and feeding tubes to romance—into a popular Tumblr also called Laughing at My Nightmare, leading him to start a nonprofit. With snark, swagger and self-deprecation, Burcaw explains from the beginning (“I was the laziest fetus you’d ever meet”) how SMA has shaped his mission. Expository vignettes jump from childhood to college and back to high school, detailing how his mischievous nature and sense of humor have set him apart from other students with disabilities and eased his insecurities. Teens with and without disabilities should be able to relate to Burcaw’s obsession with appearing as typical as possible, though his judgment of other students with disabilities—disclaimers notwithstanding—gets old. Boys in particular, perhaps, will appreciate his unflinching discussion of sex and disability, a rarely explored question. When things get too heavy, quips in speech bubbles lighten the mood.
With reflections camouflaged in wisecracks, Burcaw demonstrates that a little humor goes a long way. (Memoir. 14-18)
Pub Date: Oct. 14, 2014
ISBN: 978-1-62672-007-7
Page Count: 256
Publisher: Roaring Brook Press
Review Posted Online: Aug. 11, 2014
Kirkus Reviews Issue: Sept. 1, 2014
BOOK REVIEW
BOOK REVIEW
Though not the most balanced, an enlightening look back for the queer future.
An adaptation for teens of the adult title A Queer History of the United States (2011).
Divided into thematic sections, the text filters LGBTQIA+ history through key figures in each era from the 1500s to the present. Alongside watershed moments like the 1969 Stonewall uprising and the HIV/AIDS crisis of the 1980s and 1990s, the text brings to light less well-known people, places, and events: the 1625 free love colony of Merrymount, transgender Civil War hero Albert D.J. Cashier, and the 1951 founding of the Mattachine Society, to name a few. Throughout, the author and adapter take care to use accurate pronouns and avoid imposing contemporary terminology onto historical figures. In some cases, they quote primary sources to speculate about same-sex relationships while also reminding readers of past cultural differences in expressing strong affection between friends. Black-and-white illustrations or photos augment each chapter. Though it lacks the teen appeal and personable, conversational style of Sarah Prager’s Queer, There, and Everywhere (2017), this textbook-level survey contains a surprising amount of depth. However, the mention of transgender movements and activism—in particular, contemporary issues—runs on the slim side. Whereas chapters are devoted to over 30 ethnically diverse gay, lesbian, bisexual, or queer figures, some trans pioneers such as Christine Jorgensen and Holly Woodlawn are reduced to short sidebars.
Though not the most balanced, an enlightening look back for the queer future. (glossary, photo credits, bibliography, index) (Nonfiction. 14-18)Pub Date: June 11, 2019
ISBN: 978-0-8070-5612-7
Page Count: 336
Publisher: Beacon Press
Review Posted Online: March 12, 2019
Kirkus Reviews Issue: April 15, 2019
BOOK REVIEW
Skilled and graceful exploration of the soul of an astonishing human being.
Full-immersion journalist Kidder (Home Town, 1999, etc.) tries valiantly to keep up with a front-line, muddy-and-bloody general in the war against infectious disease in Haiti and elsewhere.
The author occasionally confesses to weariness in this gripping account—and why not? Paul Farmer, who has an M.D. and a Ph.D. from Harvard, appears to be almost preternaturally intelligent, productive, energetic, and devoted to his causes. So trotting alongside him up Haitian hills, through international airports and Siberian prisons and Cuban clinics, may be beyond the capacity of a mere mortal. Kidder begins with a swift account of his first meeting with Farmer in Haiti while working on a story about American soldiers, then describes his initial visit to the doctor’s clinic, where the journalist felt he’d “encountered a miracle.” Employing guile, grit, grins, and gifts from generous donors (especially Boston contractor Tom White), Farmer has created an oasis in Haiti where TB and AIDS meet their Waterloos. The doctor has an astonishing rapport with his patients and often travels by foot for hours over difficult terrain to treat them in their dwellings (“houses” would be far too grand a word). Kidder pauses to fill in Farmer’s amazing biography: his childhood in an eccentric family sounds like something from The Mosquito Coast; a love affair with Roald Dahl’s daughter ended amicably; his marriage to a Haitian anthropologist produced a daughter whom he sees infrequently thanks to his frenetic schedule. While studying at Duke and Harvard, Kidder writes, Farmer became obsessed with public health issues; even before he’d finished his degrees he was spending much of his time in Haiti establishing the clinic that would give him both immense personal satisfaction and unsurpassed credibility in the medical worlds he hopes to influence.
Skilled and graceful exploration of the soul of an astonishing human being.Pub Date: Sept. 16, 2003
ISBN: 0-375-50616-0
Page Count: 320
Publisher: Random House
Review Posted Online: May 19, 2010
Kirkus Reviews Issue: July 15, 2003
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