by Susan Ellison Busch ‧ RELEASE DATE: Feb. 5, 2015
A moving, intelligent examination of raising a child with a disability.
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A nurse tells her personal story of having a child with a severe genetic disorder.
Just after the birth of Busch’s second son, Mike, “his Apgar was 10, meaning that all the signs they assess in the first minutes after birth were perfect. (That was the last time in his life that he scored a perfect 10 on anything.)” It’s with heartbreaking, honest, and clever evaluations like this that Busch relates the many struggles both she and Mike endured throughout his upbringing. When Mike was 13, they finally learned the cause of his developmental challenges: 22q11 Deletion Syndrome. The term refers to the missing fragment of a chromosome, which resulted in breathing problems, constipation, learning deficiencies, and debilitating psychological problems. Busch covers episode after episode of Mike’s life: sweet moments in childhood, terrifying hospital visits, and many instances of her exasperation with his difficult nature. It all leads to an agonizing ordeal: self-immolation that leaves her son on the edge of death, facing a seemingly impossible recovery. Of his slow rehabilitation, Busch writes, “After a few months, I thought that Sisyphus had nothing on me.” Indeed, in this retelling, the uphill battle often feels tragic and insurmountable, but Busch writes with a frank, realistic perspective on every event, which keeps them from overwhelming both her and the reader. A nurse herself, Busch brings fresh insight to the frustration of modern medicine’s shortcomings. On Mike’s behalf, she clashed with unhelpful doctors and weary school districts, making this a stirring, compulsively readable story of a parent fighting for her child’s rights. However, Busch is most at ease navigating the myriad emotional reactions she’s had throughout Mike’s life. Attempts at dialogue and re-creating specific moments can feel unnatural compared with the conversational style of her internal discourse. For example, she finds strength in her religion but also brings a fascinating, critical eye to suffering and its effects on faith. It’s with this smart, compassionate voice that she writes of her most relatable struggle: reconciling the dream of normalcy with the realities of life.
A moving, intelligent examination of raising a child with a disability.Pub Date: Feb. 5, 2015
ISBN: 978-0692373293
Page Count: 328
Publisher: Grey Horse Press
Review Posted Online: March 22, 2015
Kirkus Reviews Issue: May 1, 2015
Review Program: Kirkus Indie
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by E.T.A. Hoffmann ‧ RELEASE DATE: Oct. 28, 1996
This is not the Nutcracker sweet, as passed on by Tchaikovsky and Marius Petipa. No, this is the original Hoffmann tale of 1816, in which the froth of Christmas revelry occasionally parts to let the dark underside of childhood fantasies and fears peek through. The boundaries between dream and reality fade, just as Godfather Drosselmeier, the Nutcracker's creator, is seen as alternately sinister and jolly. And Italian artist Roberto Innocenti gives an errily realistic air to Marie's dreams, in richly detailed illustrations touched by a mysterious light. A beautiful version of this classic tale, which will captivate adults and children alike. (Nutcracker; $35.00; Oct. 28, 1996; 136 pp.; 0-15-100227-4)
Pub Date: Oct. 28, 1996
ISBN: 0-15-100227-4
Page Count: 136
Publisher: Harcourt
Review Posted Online: May 19, 2010
Kirkus Reviews Issue: Aug. 15, 1996
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by Ludwig Bemelmans ‧ RELEASE DATE: Feb. 23, 1955
An extravaganza in Bemelmans' inimitable vein, but written almost dead pan, with sly, amusing, sometimes biting undertones, breaking through. For Bemelmans was "the man who came to cocktails". And his hostess was Lady Mendl (Elsie de Wolfe), arbiter of American decorating taste over a generation. Lady Mendl was an incredible person,- self-made in proper American tradition on the one hand, for she had been haunted by the poverty of her childhood, and the years of struggle up from its ugliness,- until she became synonymous with the exotic, exquisite, worshipper at beauty's whrine. Bemelmans draws a portrait in extremes, through apt descriptions, through hilarious anecdote, through surprisingly sympathetic and understanding bits of appreciation. The scene shifts from Hollywood to the home she loved the best in Versailles. One meets in passing a vast roster of famous figures of the international and artistic set. And always one feels Bemelmans, slightly offstage, observing, recording, commenting, illustrated.
Pub Date: Feb. 23, 1955
ISBN: 0670717797
Page Count: -
Publisher: Viking
Review Posted Online: Oct. 25, 2011
Kirkus Reviews Issue: Feb. 1, 1955
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