A mind-expanding collection of important stories.
An eye-opening collection of stories “about discrimination against individual people with disabilities and about exclusion of the group.”
Justesen settled in Chicago in 2014 after a career in Denmark as a human rights lawyer advocating for physically and mentally disabled men and women. Almost all the case studies here derive from oral histories she compiled in Chicago, inspired in part by the work of Studs Terkel. As the author shows, disabilities stretch far beyond those that are visible, such as blindness or the use of a wheelchair. Many of the disabilities of those she profiles may not be immediately apparent or constitute a condition generally outside widespread societal consciousness—e.g., deafness, autism, diabetes, dwarfism, severe arthritis, cerebral palsy, muscular dystrophy, depression, and more. For Justesen, negative treatment of individuals with disabilities constitutes a human rights violation. Throughout the text, she amplifies the repeated pleas of her interviewees: Please don’t treat me as a person to be pitied or as someone who cannot perform a high-level job; please don’t tease me or bully me, and please don’t pretend I am invisible when you encounter me. The book suggests that people of color who are disabled are often treated worse than white men and women. Justesen wisely includes oral histories of her subject’s paid caretakers as well as family members. As she clearly shows, poor treatment of the disabled yields negative ripple effects throughout society. The author opens the collection by illuminating the anger displayed by those who feel that they are considered “less than.” In the next section, Justesen explains the reality of disability entering the realm of “social construct,” akin to discrimination based on skin color or gender orientation. “Disability is not miserable,” she writes. “But not being regarded, not being respected, being seen as less than, not being treated with dignity, all this is miserable. Barriers in the world can make living with a disability miserable.”
A mind-expanding collection of important stories.Pub Date: Oct. 1, 2019
ISBN: 978-1-64160-158-0
Page Count: 336
Publisher: Lawrence Hill Books/Chicago Review
Review Posted Online: June 24, 2019
Kirkus Reviews Issue: July 15, 2019
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...
A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.
Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.Pub Date: Jan. 19, 2016
ISBN: 978-0-8129-8840-6
Page Count: 248
Publisher: Random House
Review Posted Online: Sept. 29, 2015
Kirkus Reviews Issue: Oct. 15, 2015
PERSPECTIVES
Well-told and admonitory.
Young-rags-to-mature-riches memoir by broker and motivational speaker Gardner.
Born and raised in the Milwaukee ghetto, the author pulled himself up from considerable disadvantage. He was fatherless, and his adored mother wasn’t always around; once, as a child, he spied her at a family funeral accompanied by a prison guard. When beautiful, evanescent Moms was there, Chris also had to deal with Freddie “I ain’t your goddamn daddy!” Triplett, one of the meanest stepfathers in recent literature. Chris did “the dozens” with the homies, boosted a bit and in the course of youthful adventure was raped. His heroes were Miles Davis, James Brown and Muhammad Ali. Meanwhile, at the behest of Moms, he developed a fondness for reading. He joined the Navy and became a medic (preparing badass Marines for proctology), and a proficient lab technician. Moving up in San Francisco, married and then divorced, he sold medical supplies. He was recruited as a trainee at Dean Witter just around the time he became a homeless single father. All his belongings in a shopping cart, Gardner sometimes slept with his young son at the office (apparently undiscovered by the night cleaning crew). The two also frequently bedded down in a public restroom. After Gardner’s talents were finally appreciated by the firm of Bear Stearns, his American Dream became real. He got the cool duds, hot car and fine ladies so coveted from afar back in the day. He even had a meeting with Nelson Mandela. Through it all, he remained a prideful parent. His own no-daddy blues are gone now.
Well-told and admonitory.Pub Date: June 1, 2006
ISBN: 0-06-074486-3
Page Count: 320
Publisher: Amistad/HarperCollins
Review Posted Online: May 19, 2010
Kirkus Reviews Issue: March 15, 2006
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