No pity or paternalism here, just the interesting confluence of technology and activism.
Edifying portraits of activists, therapists, technicians, and others working to help the disabled participate more fully in mainstream American life.
Potok, a painter and writer who chronicled the early stages of his blindness due to retinitis pigmentosa in Ordinary Daylight (not reviewed), thinks of disability “politically, as another form of ethnicity.” With that concept in mind, he set about interviewing people (disabled or not) who devote themselves to the transformation of technology and public policy in ways that benefit the disabled. Potok's narrative begins in Morristown, New Jersey, with Pete Lang, a guide-dog trainer at the Seeing Eye, the oldest and largest such school in the country. For the author, “training with the first dog was a giant move, not only in shrugging off my natural fears about putting my life in the hands of a dog, but in being unequivocally identified from then on as a blind man.” While the text mildly emphasizes technology benefiting the blind (including a profile of Ted Hunter, developer of a computer program that translates text, icons, and graphics into speech), it also highlights prostheses makers, a bioethics professor, social policy activists, and a music therapist: Connie Tomaino of New York City’s Beth Abraham Hospital, one of a handful of researchers exploring the neurological links between music and memory. They have found, the author tells us, that Parkinson's patients unable to walk unassisted are sometimes able to walk to the beat of a metronome, and that stroke victims who have lost the ability to speak may still be able to sing (an activity controlled by a different part of the brain) and in this roundabout way rebuild the ability to talk. With all of the gains that have been made by and for the disabled, Potok is quick to point out, they still suffer formidable shortfalls in income, employment, and education opportunities.
No pity or paternalism here, just the interesting confluence of technology and activism.Pub Date: Feb. 4, 2002
ISBN: 0-553-80215-1
Page Count: 320
Publisher: Bantam
Review Posted Online: May 19, 2010
Kirkus Reviews Issue: Dec. 1, 2001
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...
A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.
Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.Pub Date: Jan. 19, 2016
ISBN: 978-0-8129-8840-6
Page Count: 248
Publisher: Random House
Review Posted Online: Sept. 29, 2015
Kirkus Reviews Issue: Oct. 15, 2015
PERSPECTIVES
For Howard Zinn, long-time civil rights and anti-war activist, history and ideology have a lot in common. Since he thinks that everything is in someone's interest, the historian—Zinn posits—has to figure out whose interests he or she is defining/defending/reconstructing (hence one of his previous books, The Politics of History). Zinn has no doubts about where he stands in this "people's history": "it is a history disrespectful of governments and respectful of people's movements of resistance." So what we get here, instead of the usual survey of wars, presidents, and institutions, is a survey of the usual rebellions, strikes, and protest movements. Zinn starts out by depicting the arrival of Columbus in North America from the standpoint of the Indians (which amounts to their standpoint as constructed from the observations of the Europeans); and, after easily establishing the cultural disharmony that ensued, he goes on to the importation of slaves into the colonies. Add the laborers and indentured servants that followed, plus women and later immigrants, and you have Zinn's amorphous constituency. To hear Zinn tell it, all anyone did in America at any time was to oppress or be oppressed; and so he obscures as much as his hated mainstream historical foes do—only in Zinn's case there is that absurd presumption that virtually everything that came to pass was the work of ruling-class planning: this amounts to one great indictment for conspiracy. Despite surface similarities, this is not a social history, since we get no sense of the fabric of life. Instead of negating the one-sided histories he detests, Zinn has merely reversed the image; the distortion remains.
Pub Date: Jan. 1, 1979
ISBN: 0061965588
Page Count: 772
Publisher: Harper & Row
Review Posted Online: May 26, 2012
Kirkus Reviews Issue: Jan. 1, 1979
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