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ELEGY FOR A DISEASE

A PERSONAL AND CULTURAL HISTORY OF POLIO

An informative and rewarding narrative of living with a disability, occasionally veering off course.

Memoir of a life shaped not just by polio but also by society’s perceptions of the disease.

Disability-rights activist and fiction-writer Finger (Bone Truth, 1994, etc.) was only three when she contracted polio, in 1954; she has no memories of life before the disease and only vague ones of her initial experience with it. Her text combines a personal history of growing up with polio with a history of the disease itself: its viral origins, early epidemics and the myths surrounding its effects and treatments. The generally held belief that polio survivors suffered only physical symptoms that with hard work could be overcome (witness FDR), combined with the well-publicized “success” of Sister Kenny’s hot-packing treatment, put pressure on its victims to cheerfully minimize their problems and fit into the normal world. The author relates the attempts made to repair her body, the discrimination she encountered, her refusal to associate with other disabled people, her rejections in the workplace and the many obstacles to conducting an ordinary life with or without crutches or a wheelchair. Doctors have too often overlooked polio’s neurological effects, she says. Her recurring bouts of depression, a suicide attempt and hospitalization for mental illness would seem to support this contention, but it’s difficult to decide from her account what exactly played a greater role in these developments: polio, or abuse by her father. Harrowing descriptions of his violent attacks and her mother’s weakness in the face of them send what began as a personal and social history of polio off into a different direction.

An informative and rewarding narrative of living with a disability, occasionally veering off course.

Pub Date: Nov. 1, 2006

ISBN: 0-312-34757-X

Page Count: 304

Publisher: St. Martin's

Review Posted Online: May 19, 2010

Kirkus Reviews Issue: Sept. 1, 2006

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WHY WE SWIM

An absorbing, wide-ranging story of humans’ relationship with the water.

A study of swimming as sport, survival method, basis for community, and route to physical and mental well-being.

For Bay Area writer Tsui (American Chinatown: A People's History of Five Neighborhoods, 2009), swimming is in her blood. As she recounts, her parents met in a Hong Kong swimming pool, and she often visited the beach as a child and competed on a swim team in high school. Midway through the engaging narrative, the author explains how she rejoined the team at age 40, just as her 6-year-old was signing up for the first time. Chronicling her interviews with scientists and swimmers alike, Tsui notes the many health benefits of swimming, some of which are mental. Swimmers often achieve the “flow” state and get their best ideas while in the water. Her travels took her from the California coast, where she dove for abalone and swam from Alcatraz back to San Francisco, to Tokyo, where she heard about the “samurai swimming” martial arts tradition. In Iceland, she met Guðlaugur Friðþórsson, a local celebrity who, in 1984, survived six hours in a winter sea after his fishing vessel capsized, earning him the nickname “the human seal.” Although humans are generally adapted to life on land, the author discovered that some have extra advantages in the water. The Bajau people of Indonesia, for instance, can do 10-minute free dives while hunting because their spleens are 50% larger than average. For most, though, it’s simply a matter of practice. Tsui discussed swimming with Dara Torres, who became the oldest Olympic swimmer at age 41, and swam with Kim Chambers, one of the few people to complete the daunting Oceans Seven marathon swim challenge. Drawing on personal experience, history, biology, and social science, the author conveys the appeal of “an unflinching giving-over to an element” and makes a convincing case for broader access to swimming education (372,000 people still drown annually).

An absorbing, wide-ranging story of humans’ relationship with the water.

Pub Date: April 14, 2020

ISBN: 978-1-61620-786-1

Page Count: 288

Publisher: Algonquin

Review Posted Online: Jan. 4, 2020

Kirkus Reviews Issue: Feb. 1, 2020

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THE IMMORTAL LIFE OF HENRIETTA LACKS

Skloot's meticulous, riveting account strikes a humanistic balance between sociological history, venerable portraiture and...

A dense, absorbing investigation into the medical community's exploitation of a dying woman and her family's struggle to salvage truth and dignity decades later.

In a well-paced, vibrant narrative, Popular Science contributor and Culture Dish blogger Skloot (Creative Writing/Univ. of Memphis) demonstrates that for every human cell put under a microscope, a complex life story is inexorably attached, to which doctors, researchers and laboratories have often been woefully insensitive and unaccountable. In 1951, Henrietta Lacks, an African-American mother of five, was diagnosed with what proved to be a fatal form of cervical cancer. At Johns Hopkins, the doctors harvested cells from her cervix without her permission and distributed them to labs around the globe, where they were multiplied and used for a diverse array of treatments. Known as HeLa cells, they became one of the world's most ubiquitous sources for medical research of everything from hormones, steroids and vitamins to gene mapping, in vitro fertilization, even the polio vaccine—all without the knowledge, must less consent, of the Lacks family. Skloot spent a decade interviewing every relative of Lacks she could find, excavating difficult memories and long-simmering outrage that had lay dormant since their loved one's sorrowful demise. Equal parts intimate biography and brutal clinical reportage, Skloot's graceful narrative adeptly navigates the wrenching Lack family recollections and the sobering, overarching realities of poverty and pre–civil-rights racism. The author's style is matched by a methodical scientific rigor and manifest expertise in the field.

Skloot's meticulous, riveting account strikes a humanistic balance between sociological history, venerable portraiture and Petri dish politics.

Pub Date: Feb. 9, 2010

ISBN: 978-1-4000-5217-2

Page Count: 320

Publisher: Crown

Review Posted Online: Dec. 22, 2010

Kirkus Reviews Issue: Jan. 1, 2010

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