An inspiring and illuminating memoir.
An Eritrean American Deafblind disabilities advocate tells the story of how she learned to succeed in a world made to the measure of sighted, hearing people.
Haben grew up in Oakland as the daughter of Eritrean parents who fled war-torn Ethiopia. Born with exceptionally poor vision and hearing that deteriorated steadily as she aged, her Deafblind world felt neither “small [nor] limited” and was instead her comfortable “normal.” Though the author’s disabilities sometimes caused her to struggle in school and daily life, her positive outlook—shaped in part by parents who had struggled to build a new life in America and playmates who treated her as “someone with gifts to share and lessons to teach”—helped her overcome the barriers that stood in her way. As a teenager, the author consciously transcended both her limitations and the protective boundaries set by her parents by learning to salsa and participating in a school-building project in Mali. She spent part of her post–high school summer at the Louisiana Center for the Blind, where she learned how to navigate with a cane and guide dog and to use a radial arm saw. In college, the author unwittingly stumbled upon her career path when she fought for, and won, the right to have the printed cafeteria menus she could not read emailed to a personal computer that translated them into digital braille. She went on to attend Harvard Law School, becoming its first Deafblind graduate. As a public service lawyer, she became part of the legal team that helped expand coverage provided by the Americans with Disabilities Act to include not just the brick-and-mortar world, but the digital one as well. Warmhearted and optimistic, the book celebrates personal courage and triumph as well as the unlimited potential of those whose real disability is living in a society that too often does not make accommodations for their physical impairments.
An inspiring and illuminating memoir.Pub Date: Aug. 6, 2019
ISBN: 978-1-5387-2872-7
Page Count: 288
Publisher: Twelve
Review Posted Online: May 25, 2019
Kirkus Reviews Issue: June 15, 2019
The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the...
Elie Wiesel spent his early years in a small Transylvanian town as one of four children.
He was the only one of the family to survive what Francois Maurois, in his introduction, calls the "human holocaust" of the persecution of the Jews, which began with the restrictions, the singularization of the yellow star, the enclosure within the ghetto, and went on to the mass deportations to the ovens of Auschwitz and Buchenwald. There are unforgettable and horrifying scenes here in this spare and sombre memoir of this experience of the hanging of a child, of his first farewell with his father who leaves him an inheritance of a knife and a spoon, and of his last goodbye at Buchenwald his father's corpse is already cold let alone the long months of survival under unconscionable conditions.
Pub Date: Jan. 16, 2006
ISBN: 0374500010
Page Count: 120
Publisher: Hill & Wang
Review Posted Online: Oct. 7, 2011
Kirkus Reviews Issue: Jan. 15, 2006
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...
A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.
Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.Pub Date: Jan. 19, 2016
ISBN: 978-0-8129-8840-6
Page Count: 248
Publisher: Random House
Review Posted Online: Sept. 29, 2015
Kirkus Reviews Issue: Oct. 15, 2015
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