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LIFE AS JAMIE KNOWS IT

AN EXCEPTIONAL CHILD GROWS UP

An inspiring family scrapbook offering hopeful reinforcement for parents in similar situations.

A prideful father further memorializes the life of his son, who was born with Down syndrome.

In this sequel to Life As We Know It (1996), Bérubé (Literature/Penn State Univ.; The Secret Life of Stories: From Don Quixote to Harry Potter, How Understanding Intellectual Disability Transforms the Way We Read, 2016, etc.) continues his compassionate chronicling of his son Jamie’s life. This book picks up 20 years after the first and finds the boy in adulthood facing the many challenges of being a productive young man in the sometimes-indifferent modern world. The author addresses these contemporary hurdles through illuminating chapters on his son’s emotional development, the protectiveness and nurturing relationship with Jamie’s older brother, Nick, and Jamie’s complex sadness and confusion when his brother left for college. Embedded in a chapter on his son’s physical well-being are the author’s own perspectives on such topics as unnecessary amniocentesis and the state of American health care. In other sections, Bérubé shares anecdotes on Jamie’s trial-and-error exposures to travel and culture and how he overcame a fear of water to become a competitive swimmer at 17 in the Special Olympics. Perhaps most engaging are the stories of Jamie’s educational accomplishments and subsequent search for gainful employment, which became the subject of a heartfelt 2014 essay. To their credit, both the author and his wife have raised Jamie to the best of their abilities as compassionate parents, though the book is very much told from Bérubé’s own perspective. Janet, somewhat disappointingly, appears much less in this book than in the author’s first, and readers may miss her encouraging voice. While the author clearly paints the life of an adult with Down syndrome as one hinging on the compassion and understanding of others, he also paints Jamie’s experience and immersion into the world as a story of triumph, bravery, independence, and great self-awareness.

An inspiring family scrapbook offering hopeful reinforcement for parents in similar situations.

Pub Date: Oct. 4, 2016

ISBN: 978-0-8070-1931-3

Page Count: 256

Publisher: Beacon Press

Review Posted Online: Aug. 2, 2016

Kirkus Reviews Issue: Aug. 15, 2016

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WHEN BREATH BECOMES AIR

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...

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A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.

Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.

Pub Date: Jan. 19, 2016

ISBN: 978-0-8129-8840-6

Page Count: 248

Publisher: Random House

Review Posted Online: Sept. 29, 2015

Kirkus Reviews Issue: Oct. 15, 2015

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THE PURSUIT OF HAPPYNESS

FROM MEAN STREETS TO WALL STREET

Well-told and admonitory.

Young-rags-to-mature-riches memoir by broker and motivational speaker Gardner.

Born and raised in the Milwaukee ghetto, the author pulled himself up from considerable disadvantage. He was fatherless, and his adored mother wasn’t always around; once, as a child, he spied her at a family funeral accompanied by a prison guard. When beautiful, evanescent Moms was there, Chris also had to deal with Freddie “I ain’t your goddamn daddy!” Triplett, one of the meanest stepfathers in recent literature. Chris did “the dozens” with the homies, boosted a bit and in the course of youthful adventure was raped. His heroes were Miles Davis, James Brown and Muhammad Ali. Meanwhile, at the behest of Moms, he developed a fondness for reading. He joined the Navy and became a medic (preparing badass Marines for proctology), and a proficient lab technician. Moving up in San Francisco, married and then divorced, he sold medical supplies. He was recruited as a trainee at Dean Witter just around the time he became a homeless single father. All his belongings in a shopping cart, Gardner sometimes slept with his young son at the office (apparently undiscovered by the night cleaning crew). The two also frequently bedded down in a public restroom. After Gardner’s talents were finally appreciated by the firm of Bear Stearns, his American Dream became real. He got the cool duds, hot car and fine ladies so coveted from afar back in the day. He even had a meeting with Nelson Mandela. Through it all, he remained a prideful parent. His own no-daddy blues are gone now.

Well-told and admonitory.

Pub Date: June 1, 2006

ISBN: 0-06-074486-3

Page Count: 320

Publisher: Amistad/HarperCollins

Review Posted Online: May 19, 2010

Kirkus Reviews Issue: March 15, 2006

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