An honest, intense look at a family’s experience with severe disability.
A matter-of-fact, revealing debut memoir by the sister of a severely disabled woman.
Sullivan’s older sister, Mikey, was born prematurely and lost her vision early in life. Initially, her blindness seemed to be her main challenge. At age 2, however, Mikey began to scream, and she seemed to stop feeling pain. Her ability to communicate or understand others became severely limited. She withdrew into her own world and never returned to any sort of normalcy. The term applied by physicians was “brain damaged,” although the author alludes to more modern and precise diagnoses of “intellectual disability” and “autism.” By the time Mikey was 12, her behavior—which included sporadic episodes of violence toward herself and others—necessitated her institutionalization, a decision that both agonized and relieved the family. Her experience at institutions, however, was often substandard and even abusive, and Sullivan pulls no punches in depicting a flawed system and flawed family members who were at the same time caring, doing what they could to help. While Mikey remained the center of the family’s life in many ways, Sullivan presents a robust, multidimensional story that reflects on her own journey beyond her relationship with her sister. Being an adolescent during the height of the 1960s “free love” and drug culture—combined with the emotional issues that emerged from her family life—set the stage for what the author calls a “perfect storm” that would translate into years marked by chaos and addiction. The memoir is often heartbreaking, but Sullivan’s depictions of a complicated and loving family and the unique issues faced by siblings of the severely disabled provide a sense of hope and closure.
An honest, intense look at a family’s experience with severe disability.Pub Date: Aug. 27, 2017
ISBN: 978-1-63152-270-3
Page Count: 256
Publisher: She Writes Press
Review Posted Online: July 19, 2017
Review Program: Kirkus Indie
The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the...
Elie Wiesel spent his early years in a small Transylvanian town as one of four children.
He was the only one of the family to survive what Francois Maurois, in his introduction, calls the "human holocaust" of the persecution of the Jews, which began with the restrictions, the singularization of the yellow star, the enclosure within the ghetto, and went on to the mass deportations to the ovens of Auschwitz and Buchenwald. There are unforgettable and horrifying scenes here in this spare and sombre memoir of this experience of the hanging of a child, of his first farewell with his father who leaves him an inheritance of a knife and a spoon, and of his last goodbye at Buchenwald his father's corpse is already cold let alone the long months of survival under unconscionable conditions.
Pub Date: Jan. 16, 2006
ISBN: 0374500010
Page Count: 120
Publisher: Hill & Wang
Review Posted Online: Oct. 7, 2011
Kirkus Reviews Issue: Jan. 15, 2006
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...
A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.
Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.Pub Date: Jan. 19, 2016
ISBN: 978-0-8129-8840-6
Page Count: 248
Publisher: Random House
Review Posted Online: Sept. 29, 2015
Kirkus Reviews Issue: Oct. 15, 2015
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