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MIRACLE BOY GROWS UP

HOW THE DISABILITY RIGHTS REVOLUTION SAVED MY SANITY

Mattlin’s life is inspiring, but his attempt at an unsentimental memoir falls short of the mark.

Born with a severe neuromuscular condition, writer and NPR commentator Mattlin pens the story of his life so far.

In 1962, Mattlin was six months old and still unable to sit up on his own. After years of visits to different medical specialists, he received a diagnosis of spinal muscular atrophy, an inherited disease that causes progressive, degenerative muscle weakness. While most people with this illness are unlikely to live to adulthood, Mattlin’s story is filled with details of how he managed to beat the odds again and again. He not only survived childhood, but be became one of the first wheelchair-bound students to graduate from Harvard. He eventually married and had two children. Although he strives to make this memoir as free from self-pity as possible, what comes across is a portrait of a rather unpleasant man. While the author touches on the history of the disability movement throughout the book, the story gets bogged down by a litany of Mattlin’s grudges, from the Harvard dorm room he was promised but didn’t get, to his disagreements with his father over his financial support. He describes how nearly every personal attendant he’s had has failed him—they are variously described as drunk, stupid, untrustworthy, crazy or some combination thereof. Mattlin also describes his sexual proclivities at uncomfortable length—e.g., how he manages to masturbate despite his muscular degeneration and his adolescent attempts at autofellatio, “a dirty little secret of the extremely scoliotic.” It isn’t until the final pages of the book—during which Mattlin discusses his hiring of an attendant who punctured his “self-righteous emotional shield”—that the author begins to open up in a genuine way. Unfortunately, it may be too late for most readers.

Mattlin’s life is inspiring, but his attempt at an unsentimental memoir falls short of the mark.

Pub Date: Aug. 1, 2012

ISBN: 978-1-61608-731-9

Page Count: 320

Publisher: Skyhorse Publishing

Review Posted Online: May 12, 2012

Kirkus Reviews Issue: June 1, 2012

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INTO THE WILD

A wonderful page-turner written with humility, immediacy, and great style. Nothing came cheap and easy to McCandless, nor...

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The excruciating story of a young man on a quest for knowledge and experience, a search that eventually cooked his goose, told with the flair of a seasoned investigative reporter by Outside magazine contributing editor Krakauer (Eiger Dreams, 1990). 

Chris McCandless loved the road, the unadorned life, the Tolstoyan call to asceticism. After graduating college, he took off on another of his long destinationless journeys, this time cutting all contact with his family and changing his name to Alex Supertramp. He was a gent of strong opinions, and he shared them with those he met: "You must lose your inclination for monotonous security and adopt a helter-skelter style of life''; "be nomadic.'' Ultimately, in 1992, his terms got him into mortal trouble when he ran up against something—the Alaskan wild—that didn't give a hoot about Supertramp's worldview; his decomposed corpse was found 16 weeks after he entered the bush. Many people felt McCandless was just a hubris-laden jerk with a death wish (he had discarded his map before going into the wild and brought no food but a bag of rice). Krakauer thought not. Admitting an interest that bordered on obsession, he dug deep into McCandless's life. He found a willful, reckless, moody boyhood; an ugly little secret that sundered the relationship between father and son; a moral absolutism that agitated the young man's soul and drove him to extremes; but he was no more a nutcase than other pilgrims. Writing in supple, electric prose, Krakauer tries to make sense of McCandless (while scrupulously avoiding off-the-rack psychoanalysis): his risky behavior and the rites associated with it, his asceticism, his love of wide open spaces, the flights of his soul.

A wonderful page-turner written with humility, immediacy, and great style. Nothing came cheap and easy to McCandless, nor will it to readers of Krakauer's narrative. (4 maps) (First printing of 35,000; author tour)

Pub Date: Jan. 1, 1996

ISBN: 0-679-42850-X

Page Count: 320

Publisher: Villard

Review Posted Online: May 19, 2010

Kirkus Reviews Issue: Oct. 15, 1995

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WHEN BREATH BECOMES AIR

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...

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A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.

Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.

Pub Date: Jan. 19, 2016

ISBN: 978-0-8129-8840-6

Page Count: 248

Publisher: Random House

Review Posted Online: Sept. 29, 2015

Kirkus Reviews Issue: Oct. 15, 2015

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