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MIRACLE BOY GROWS UP

HOW THE DISABILITY RIGHTS REVOLUTION SAVED MY SANITY

Mattlin’s life is inspiring, but his attempt at an unsentimental memoir falls short of the mark.

Born with a severe neuromuscular condition, writer and NPR commentator Mattlin pens the story of his life so far.

In 1962, Mattlin was six months old and still unable to sit up on his own. After years of visits to different medical specialists, he received a diagnosis of spinal muscular atrophy, an inherited disease that causes progressive, degenerative muscle weakness. While most people with this illness are unlikely to live to adulthood, Mattlin’s story is filled with details of how he managed to beat the odds again and again. He not only survived childhood, but be became one of the first wheelchair-bound students to graduate from Harvard. He eventually married and had two children. Although he strives to make this memoir as free from self-pity as possible, what comes across is a portrait of a rather unpleasant man. While the author touches on the history of the disability movement throughout the book, the story gets bogged down by a litany of Mattlin’s grudges, from the Harvard dorm room he was promised but didn’t get, to his disagreements with his father over his financial support. He describes how nearly every personal attendant he’s had has failed him—they are variously described as drunk, stupid, untrustworthy, crazy or some combination thereof. Mattlin also describes his sexual proclivities at uncomfortable length—e.g., how he manages to masturbate despite his muscular degeneration and his adolescent attempts at autofellatio, “a dirty little secret of the extremely scoliotic.” It isn’t until the final pages of the book—during which Mattlin discusses his hiring of an attendant who punctured his “self-righteous emotional shield”—that the author begins to open up in a genuine way. Unfortunately, it may be too late for most readers.

Mattlin’s life is inspiring, but his attempt at an unsentimental memoir falls short of the mark.

Pub Date: Aug. 1, 2012

ISBN: 978-1-61608-731-9

Page Count: 320

Publisher: Skyhorse Publishing

Review Posted Online: May 12, 2012

Kirkus Reviews Issue: June 1, 2012

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WHEN BREATH BECOMES AIR

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...

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A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.

Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”

A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.

Pub Date: Jan. 19, 2016

ISBN: 978-0-8129-8840-6

Page Count: 248

Publisher: Random House

Review Posted Online: Sept. 29, 2015

Kirkus Reviews Issue: Oct. 15, 2015

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THE PURSUIT OF HAPPYNESS

FROM MEAN STREETS TO WALL STREET

Well-told and admonitory.

Young-rags-to-mature-riches memoir by broker and motivational speaker Gardner.

Born and raised in the Milwaukee ghetto, the author pulled himself up from considerable disadvantage. He was fatherless, and his adored mother wasn’t always around; once, as a child, he spied her at a family funeral accompanied by a prison guard. When beautiful, evanescent Moms was there, Chris also had to deal with Freddie “I ain’t your goddamn daddy!” Triplett, one of the meanest stepfathers in recent literature. Chris did “the dozens” with the homies, boosted a bit and in the course of youthful adventure was raped. His heroes were Miles Davis, James Brown and Muhammad Ali. Meanwhile, at the behest of Moms, he developed a fondness for reading. He joined the Navy and became a medic (preparing badass Marines for proctology), and a proficient lab technician. Moving up in San Francisco, married and then divorced, he sold medical supplies. He was recruited as a trainee at Dean Witter just around the time he became a homeless single father. All his belongings in a shopping cart, Gardner sometimes slept with his young son at the office (apparently undiscovered by the night cleaning crew). The two also frequently bedded down in a public restroom. After Gardner’s talents were finally appreciated by the firm of Bear Stearns, his American Dream became real. He got the cool duds, hot car and fine ladies so coveted from afar back in the day. He even had a meeting with Nelson Mandela. Through it all, he remained a prideful parent. His own no-daddy blues are gone now.

Well-told and admonitory.

Pub Date: June 1, 2006

ISBN: 0-06-074486-3

Page Count: 320

Publisher: Amistad/HarperCollins

Review Posted Online: May 19, 2010

Kirkus Reviews Issue: March 15, 2006

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