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INVISIBLE

HOW YOUNG WOMEN WITH SERIOUS HEALTH ISSUES NAVIGATE WORK, RELATIONSHIPS, AND THE PRESSURE TO SEEM JUST FINE

At a moment when women’s experiences in the workplace have come to the fore, Hirsch’s eye-opening study of gender-based...

Part memoir and part sociomedical inquiry, veteran journalist Hirsch’s first book explores the many physical and emotional challenges faced by young women confronted with serious illnesses.

Inspired by her own experiences, the author focuses largely on younger women beset by significant maladies. Struck in her 20s by a daunting combination of hip surgery, thyroid cancer, Lyme disease, mast-cell activation syndrome—a rare autoimmune condition that can throw one inexplicably into anaphylactic shock—plus having witnessed her father, who suffered from multiple sclerosis, take his own life, Hirsch wonders if she is should view herself as a person having a disability, or rather "just all these weird, hard health things woven together.” In this well-researched account, which includes interviews with a number of women struggling with but refusing to be diminished by cancer, HIV, MS, and other diseases, the author notes the additional pressure to appear “youthful and carefree” amid a health crisis. Such cultural expectations lead many young women fighting disease to feel “constantly masked,” especially when fearing rejection by peers and sexual partners and subjected to callous employers—e.g., one of Hirsch’s former editors told her, “I don’t want to hear about your cancer.” In addition to disturbing anecdotal evidence showing the medical profession’s historic discounting of women’s pain, the author cites a variety of statistics showing gross gender inequity in clinical trials, which study primarily male subjects. Hirsch points out that federal Food and Drug Administration guidelines from 1977 prevented childbearing-age women from even participating in drug trials—a ban that wasn’t lifted “until 1993.” Even though about half of those living with HIV are women, a 2016 report revealed they represented only 19 percent of those studied in clinical trials of HIV antiretroviral drugs, and women were also found to be “underrepresented” in “high-impact studies of non-sex-specific cancers.”

At a moment when women’s experiences in the workplace have come to the fore, Hirsch’s eye-opening study of gender-based disparity surrounding illness will hopefully help spawn a similar reckoning for women’s health.

Pub Date: March 13, 2018

ISBN: 978-0-8070-2395-2

Page Count: 248

Publisher: Beacon Press

Review Posted Online: Jan. 22, 2018

Kirkus Reviews Issue: Feb. 1, 2018

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NIGHT

The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the...

Elie Wiesel spent his early years in a small Transylvanian town as one of four children. 

He was the only one of the family to survive what Francois Maurois, in his introduction, calls the "human holocaust" of the persecution of the Jews, which began with the restrictions, the singularization of the yellow star, the enclosure within the ghetto, and went on to the mass deportations to the ovens of Auschwitz and Buchenwald. There are unforgettable and horrifying scenes here in this spare and sombre memoir of this experience of the hanging of a child, of his first farewell with his father who leaves him an inheritance of a knife and a spoon, and of his last goodbye at Buchenwald his father's corpse is already cold let alone the long months of survival under unconscionable conditions. 

The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the sphere of suffering shared, and in this case extended to the death march itself, there is no spiritual or emotional legacy here to offset any reader reluctance.

Pub Date: Jan. 16, 2006

ISBN: 0374500010

Page Count: 120

Publisher: Hill & Wang

Review Posted Online: Oct. 7, 2011

Kirkus Reviews Issue: Jan. 15, 2006

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INTO THE WILD

A wonderful page-turner written with humility, immediacy, and great style. Nothing came cheap and easy to McCandless, nor...

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The excruciating story of a young man on a quest for knowledge and experience, a search that eventually cooked his goose, told with the flair of a seasoned investigative reporter by Outside magazine contributing editor Krakauer (Eiger Dreams, 1990). 

Chris McCandless loved the road, the unadorned life, the Tolstoyan call to asceticism. After graduating college, he took off on another of his long destinationless journeys, this time cutting all contact with his family and changing his name to Alex Supertramp. He was a gent of strong opinions, and he shared them with those he met: "You must lose your inclination for monotonous security and adopt a helter-skelter style of life''; "be nomadic.'' Ultimately, in 1992, his terms got him into mortal trouble when he ran up against something—the Alaskan wild—that didn't give a hoot about Supertramp's worldview; his decomposed corpse was found 16 weeks after he entered the bush. Many people felt McCandless was just a hubris-laden jerk with a death wish (he had discarded his map before going into the wild and brought no food but a bag of rice). Krakauer thought not. Admitting an interest that bordered on obsession, he dug deep into McCandless's life. He found a willful, reckless, moody boyhood; an ugly little secret that sundered the relationship between father and son; a moral absolutism that agitated the young man's soul and drove him to extremes; but he was no more a nutcase than other pilgrims. Writing in supple, electric prose, Krakauer tries to make sense of McCandless (while scrupulously avoiding off-the-rack psychoanalysis): his risky behavior and the rites associated with it, his asceticism, his love of wide open spaces, the flights of his soul.

A wonderful page-turner written with humility, immediacy, and great style. Nothing came cheap and easy to McCandless, nor will it to readers of Krakauer's narrative. (4 maps) (First printing of 35,000; author tour)

Pub Date: Jan. 1, 1996

ISBN: 0-679-42850-X

Page Count: 320

Publisher: Villard

Review Posted Online: May 19, 2010

Kirkus Reviews Issue: Oct. 15, 1995

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