A compassionate mother-daughter memoir written with inspiration, empathy and hope.
The story of a mysterious medical ailment that blindsided a tightly knit family.
Jackson, a successful cosmetics entrepreneur, writes in her prologue about surviving a turbulent, insecure childhood fraught with emotional neglect and exacerbated by a violent sexual assault she endured as a teenager. These experiences seem to have prepared her to deal with the sudden onset in her teenage daughter, Ali, of an extremely rare, crippling autoimmune disorder called Neuromyelitis Optica Spectrum Disease, which attacks the optic nerve and the central nervous system. Ali’s eyesight and pain levels worsened, and she was given four or five years to live. Jackson shifted into “warrior mode” and began canvassing the Los Angeles medical community for answers. A stay at the Minnesota Mayo Clinic initiated several radical chemotherapy treatments, though each debilitating stage further compromised Ali’s youthful dreams of excelling on the tennis courts. Interwoven through mother’s and daughter’s individual accounts of shock, denial, resignation and eventual acceptance are lighter scenes in which Jackson appeals to holistic healers for alternative solutions to the needles and MRIs of traditional medicine. She leavens the unsettling details of her daughter’s daunting ordeal with a personal history of her romance with infomercial magnate Bill Guthy and her progression from Hollywood makeup artist to cosmetic guru. Fully immersing herself in Ali’s malady, Jackson became medically knowledgeable about an obscure disease and ultimately founded a charitable foundation for the education and eradication of NMO. The closing “Thriver’s Guide” by Ali provides a brief five-step plan for those coping with the ailment.
A compassionate mother-daughter memoir written with inspiration, empathy and hope.Pub Date: Oct. 16, 2012
ISBN: 978-1593157333
Page Count: 288
Publisher: Vanguard/Perseus
Review Posted Online: Sept. 1, 2012
Kirkus Reviews Issue: Sept. 15, 2012
BOOK REVIEW
The author's youthfulness helps to assure the inevitable comparison with the Anne Frank diary although over and above the...
Elie Wiesel spent his early years in a small Transylvanian town as one of four children.
He was the only one of the family to survive what Francois Maurois, in his introduction, calls the "human holocaust" of the persecution of the Jews, which began with the restrictions, the singularization of the yellow star, the enclosure within the ghetto, and went on to the mass deportations to the ovens of Auschwitz and Buchenwald. There are unforgettable and horrifying scenes here in this spare and sombre memoir of this experience of the hanging of a child, of his first farewell with his father who leaves him an inheritance of a knife and a spoon, and of his last goodbye at Buchenwald his father's corpse is already cold let alone the long months of survival under unconscionable conditions.
Pub Date: Jan. 16, 2006
ISBN: 0374500010
Page Count: 120
Publisher: Hill & Wang
Review Posted Online: Oct. 7, 2011
Kirkus Reviews Issue: Jan. 15, 2006
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular...
A neurosurgeon with a passion for literature tragically finds his perfect subject after his diagnosis of terminal lung cancer.
Writing isn’t brain surgery, but it’s rare when someone adept at the latter is also so accomplished at the former. Searching for meaning and purpose in his life, Kalanithi pursued a doctorate in literature and had felt certain that he wouldn’t enter the field of medicine, in which his father and other members of his family excelled. “But I couldn’t let go of the question,” he writes, after realizing that his goals “didn’t quite fit in an English department.” “Where did biology, morality, literature and philosophy intersect?” So he decided to set aside his doctoral dissertation and belatedly prepare for medical school, which “would allow me a chance to find answers that are not in books, to find a different sort of sublime, to forge relationships with the suffering, and to keep following the question of what makes human life meaningful, even in the face of death and decay.” The author’s empathy undoubtedly made him an exceptional doctor, and the precision of his prose—as well as the moral purpose underscoring it—suggests that he could have written a good book on any subject he chose. Part of what makes this book so essential is the fact that it was written under a death sentence following the diagnosis that upended his life, just as he was preparing to end his residency and attract offers at the top of his profession. Kalanithi learned he might have 10 years to live or perhaps five. Should he return to neurosurgery (he could and did), or should he write (he also did)? Should he and his wife have a baby? They did, eight months before he died, which was less than two years after the original diagnosis. “The fact of death is unsettling,” he understates. “Yet there is no other way to live.”
A moving meditation on mortality by a gifted writer whose dual perspectives of physician and patient provide a singular clarity.Pub Date: Jan. 19, 2016
ISBN: 978-0-8129-8840-6
Page Count: 248
Publisher: Random House
Review Posted Online: Sept. 29, 2015
Kirkus Reviews Issue: Oct. 15, 2015
PERSPECTIVES
© Copyright 2025 Kirkus Media LLC. All Rights Reserved.
Follow
Popular in this Genre
We can’t wait for you to join Kirkus!
It’s free and takes less than 10 seconds!
Already have an account? Log in.
OR
Sign in with GoogleTrouble signing in? Retrieve credentials.
Welcome Back!
OR
Sign in with GoogleTrouble signing in? Retrieve credentials.
